Jonathan Pitre was born with Epidermolysis Bullosa (EB), an extremely rare genetic condition that causes the skin to blister with the slightest touch. He has expressed that there is never a moment, even when sleeping, where he is not in pain. Some of you who followed the “‘EB’ing a Mommy” blog (Tripp’s story) may already be familiar with the condition.
The children who have EB are called “butterfly children” because their fragile skin is as delicate as a butterfly’s wings. However, 14-year-old Jonathan makes you rethink what it means to be compared to this flying beauty. It is because of him that we now understand why those afflicted with the condition can be viewed as a warriors, as he is constantly being pushed to the limits and doing so with the grace akin to the endangered Monarch butterfly.
This amazing short film was created by Canadian sports channel TSN after learning about Jonathan’s intense passion for sports and his inability to play due to his condition.
Grab the tissues… this story with move and inspire you.
