EB 1

Jonathan Pitre was born with Epidermolysis Bullosa (EB), an extremely rare genetic condition that causes the skin to blister with the slightest touch. He has expressed that there is never a moment, even when sleeping, where he is not in pain. Some of you who followed the “‘EB’ing a Mommy” blog (Tripp’s story) may already be familiar with the condition.

The children who have EB are called “butterfly children” because their fragile skin is as delicate as a … Keep Reading!!!