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EB 1

This Short about the Butterfly Child Will Move You

Jonathan Pitre was born with Epidermolysis Bullosa (EB), an extremely rare genetic condition that causes the skin to blister with the slightest touch. He has expressed that there is never a moment, even when sleeping, where he is not in pain. Some of you who followed the “‘EB’ing a Mommy” blog (Tripp’s story) may already be familiar with the condition.

The children who have EB are called “butterfly children” because their fragile skin is as delicate as a … Keep Reading!!!

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